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Showing posts with label life. Show all posts
Showing posts with label life. Show all posts

Monday, January 23, 2012

And so it begins......AGAIN!

Yup....I am still alive.  I haven't really been living, but I am still breathing in and out.  It has been almost a year since I went to the hospital with Viral Meningitis and Encephalitis.  The Meningitis hurt, but the Encephalitis has taken away my life.  The damage was small...so small that you can't see it on a CT scan or an MRI.  So small that the medical community has set me aside with a pat on the head and a basket full of medications.  I have been left to sort through the wreckage of what was once an incredibly active life.
I have spent the last year of my life on anti-depressants, anti-anxiety meds, blood pressure meds, anti-seizure meds, pain pills, and nose sprays trying to find some relief from the headache that the encephalitis created on the 3rd of February 2011.  Yup...I have had a migraine-like headache non-stop, every day, all day for an entire year.  Sucks to be me.  *L*
I also have a touch of the dumb.  :)  I have some short term memory issues, and some word recall issues.  Reading a book is quite a fiasco.  I have read and re-read to remind myself what the story line is.  Sometimes I remember, sometimes I don't.  I forget the story lines of TV shows, I forget conversations I had with my husband yesterday, I forget what I wore the day before, I forget that I have told my daughter things that need to be done.  I can't remember when my doctor's appointments are.  I can't remember if I've taken my medications.  I was sure all these little things would come back as time went on.  Looks like for now....I am incredibly forgetful and very dependent on the calendar on my cell phone, the calendar on  my Nook, the calendar my husband prints out for me and hangs in the kitchen, and my husband (who has a terribly memory *L*).  Losing my memory can be worked around.  I can relearn things.  I can take notes.  I just have to get used to the fact that I can't remember things....cause I was always the one who know when the bills were due, when the appointments were.
Ok, so where am I going with this....no where really.....just getting this whole blog thing rolling again.  I have a plan I think.  My hope is to be off all of my medications by the end of the year.  I am far too young to be taking all these pills.  There has to be a better way to take care of myself.  And so begins my search to find that better way.

Tuesday, July 12, 2011

Update....Update.....

Yup....I'm still here...I'm still alive!  It would seem that my blog has gone from talking about sewing and recon-ing old clothes to how the hell I'm surviving after a bout with meningitis and encephalitis.
Sooo.....in review *L* I got sick the 3rd of February of this year.  I had to take two months off....February and March because I was on house arrest.  I went back to work, barely, at the beginning of April....I struggled through April, May, and June.  I am now on a leave of absence until I feel like I can go back to work and be able to work all day every day.  We're thinking maybe September?
Now here is the part where I get to rave about my boss.  I work for a lawyer who works as a public defender for the county.  He also happens to be my step-dad.  He has been awesome....amazing.....supportive.....understanding.  I know that I have the fact that I work for family on my side.  If I worked anywhere else I would have been let go quite some time ago.  He has put up with my need for a whole lot of sleep...with my lack of ability to recall words or how to do my job....my need for far too much medication......my need to call in at a moments notice because I have a migraine AGAIN!   Mike (the boss/step-dad) has said that my job will there when I am ready to come back!  My mom has also been awesome. She's been understanding....supportive!!  All up in my business mommy style!  *L*  She checks on me, fusses over me, laughs with me when I say crap that doesn't make any sense!  AND....she has stepped into my job to cover until I am ready.  Once again, thank goodness for family!  They may drive me crazy from time to time, but they've got my back!!
On to my husband.....he is probably the most wonderful person I know.....he has put up with a whole lot of fall out lately.  He loves me...no matter how crazy I get....he loves me!  He has taken over most all of the running of the house and family...he pays the bills, he does the housework, he makes all the phone calls, picks up my medication, does all the driving (because I'm afraid to drive).  He is the one steady thing in my whacked out head.  He puts up with my napping, my crying, my yelling, my panic attacks, my headaches, my crazy talk....and he hugs me and tells me that this is just a very small part of our lives and that we will survive this...that we will get through this!  I am so crazy in love with my husband!!
Then there are my kids....Man do I love my kids.  They have been so incredibly understanding.  They don't question when I disappear for yet another nap.  They call and check on me....they fuss over me....they're always making sure I have my purse, my keys, my glasses.....they all calmly and silently wait for me to try and remember a word, a sentence, a story.  They patiently tell me that I've already told them that story or asked them the same questions over and over again.  I think we have raised some very amazing children to be some very amazing, compassionate, loving adults and almost adults!
So......that's where I am right at this moment!

Sunday, June 5, 2011

I am still alive...

Oh yes...have no fear....I am still alive.  I have a whole stack of projects that I have finished up and I'm dying to share.  I have the pictures, I'm just too tired tonight to upload them.

Quick update on my health. .I have a neurologist....whoo hoo!!  February 3 of this year I was in the hospital for 9 days with viral meningitis where I also developed encephalitis (brain swelling).  Ok....So, yesterday was the 4 month mark.  For every single day of the last 4 months I have had a headache.  Never changes, never goes away, always in the same place.  Hence I have a neurologist.  It would seem that the brain swelling switched on my migraine switch permanently....so I've been experiencing a steady, non-stop migraine...What the hell?

My doctor has been great....my neurologist has been great.....and my husband has been the absolute best!!  He has taken over EVERYTHING around the house since I need a 2 hour nap after doing even the smallest thing!  He's amazing and I love him like crazy!  *L*

I just wanted to update really quickly...I have a ton of stuff to share with you guys....I made my daughter anime cosplay stuff for a convention, and I recently had a birthday.  My husband threw me a USO dance...including a dance instructor!  It was awesome!!  I made myself a new dress out of a disaster of an ebay purchase.  I have a ton of pictures....I will post the tomorrow....I promise.

Have a wonderful rest of the weekend!!

Monday, April 18, 2011

Just keep swimming...swimming...swimming....

Well, I'm still alive!  That's a good thing.  I still have a headache!  That's a bad thing.  I'm almost ready for the convention this weekend!  That's a good thing!  I absolutely adore my husband!  Also a good thing!  I have the best kids in the whole world!  Yet another good thing!
I am going to see a neurologist next week to see if they can figure out what the problem is....Fingers crossed everyone  :)
I'm sure there's sooo much more to say, but it's way past my bedtime.  *L*  I'm write more tomorrow.

Nighty night my friends!!

Saturday, April 9, 2011

two more weeks until conventionm time!!!! EEEEK

It's Saturday morning and my family is still asleep.  It's when I love them all the most.  *L*  So, I'm sitting here in the quiet (the dog isn't even snoring *L*) contemplating....well....everything.

We leave for the anime convention on the 21st....just about two weeks.  If my daughter were awake I could give you an exact day, hour, minute count.  *L*  She's only just a little excited.  It's the thing she plans for and saves her babysitting money for all year long.

Today I will be sewing...and sewing....and sewing.  I am almost finished with one of her costumes...just a few little tweaks.  I cut out her second costume...just waiting on 10 hot pink zippers to arrive in the mail.  My husbands coat is almost finished, just have to do some finishing touches and add lots and lots of buttons.  And his vest is cut out, just needs to be put together.

 My outfit is coming together....I just got the sexiest boots in the mail...knee high lace up jobs...I didn't think I would like them or find them comfortable, but got them because they went with the theme of my outfit!  However, i am in love with them...so comfy and soft....I will post pictures when the outfit is done.

http://www.discountwomensdressshoes.com/servlet/StoreFront ( go here...they have amazing prices and ship fast....and they have some very vintage-esque shoes (that I will be ordering very soon *L*)

 I got all the parts to finish my underbust corset, so I will try to get that mostly done this weekend as well.  *L*

THEN....on top of all the stuff I'm working on for the convention, my daughter is in a play and brought home two of the costumes that are cut out but need to be sewed together...sure....no problem  *L*  I can do that!

I've recently been teaching her to sew...it's a good skill to have...and now the teacher/play director keeps giving her things to make because no one else in the class knows how to sew....*L*  oops.  I told her, welcome to your new hobby....you'll get hit up AAALLLL the time to just "whip something up".  She says she doesn't mind!  *L*

On a side note...let me leave you with a picture that sums up the new and not so improved me right now...
I complain, but I am grateful every day that I am alive!

Thursday, March 31, 2011

Really? Seriously??

Well....I officially start back to work full-time ish next week.  A nice regular schedule...finally.  I have had quite a few set backs lately.  The doctor put me on an anti-viral medication so I don't get sick again....sadly, the pills made me feel like crap!  There are about 30 side effects to this medication and I had almost all but the vomiting. Whoo hoo....they took me off that and I have sworn to never ever take it again unless it's being delivered via IV in the hospital.  Yucky stuff!
This little adventure started on February 2nd.  Since they took me off the anti viral medication I feel better...all the side effects but one went away!  What is this last effect, you ask?  It's a headache.  A bad, bad, BAD headache that makes me want to punch babies!  I have had it every single day for the past two months.  It never changes in intensity, in never changes location....it never changes!  And I think it sucks a whole lot.  Sooo...what does this mean for Trixie?  I have to go see a Neurologist...I fear one of two things happening:
1.  They tell me they can't find anything wrong with me and tell me to just suck it up, it must be all in my mind.
or
2.  They find something terribly wrong...."sorry Trixie...that's a bad brain you got there...gonna have to tear it out and replace it!"
Silly and irrational, I know, but that's my fear.  *L*

I have been sewing a little bit.  We're going to a convention next month and I have a TON of things to finish up.  I keep meaning to make myself a list so I can keep track...in case I haven't mentioned it, the meningitis and encephalitis did quite a little scramble of my memory....basically....can't remember crap!!  *L*  I take lots and lots of notes...Post its are my friends!  I keep forgetting to make myself that list.  HA!!

My husband somehow talked me into playing dungeons & dragons with him.  He is a gamer....loves miniatures and dice...I sat down to watch him, our oldest son, and a friend play...and somehow, probably due to my brain damage, I ended up with a character.  WHAT THE HELL??  I don't game!!  I play the occasional video game (hubby bought me a Wii for mothers day so I could play Cooking Mama *L*) and I do play the occasional board game with the kids.  But I don't play fantasy games!  I don't play zombie games!    And yet, I find that now I own my own set of pink glittery dice, and a handful of tiny little miniature people that need to be painted.  I find myself saying things like, "honey, does my thunderwave only affect my target, or will it knock back my companions?"  "honey, if I use my second wind to heal does that give me a +2 to my defense for the length of my turn".  WHAT THE HELL??  I'm gaming!!  *sigh*  I must love my husband very very much  *L*

So, here is one of the tiny tiny little miniatures I'm painting:
Can't figure out how to rotate this picture.  *L*

And what have I been sewing, you ask?  Well, let me show you:
My crazed steampunk-ish bustle skirt!!
Yeah...can't rotate this picture either!


Wednesday, March 23, 2011

Fingers crossed that it's all smooth sailing....

Oh yes...been gone for a while now.  I survived my 9 days in the hospital and my two weeks on home iv infusions.  I started back to work two whole hours a day on the first of march.  I made it through the first two weeks then *BAM*....My husband's dad passed away on March 14.  Took another week off work to help my husband and my mother-in-law.  Started back to work this monday for 5 whole hours a day....then Monday night....*BAM*...major freakout, depression, insomnia.  Off to the doctor we go.  It would seem that the anti-viral suppressive medication makes me sick...gives me a headache....won't let me sleep.....makes me depressed....makes me anxious....makes me jittery......makes my legs move AAALLL night long....makes my joints ache.  WHAT THE HELL??  I have been taken off that medication....I still have a bit of a headache, but I think I'm on the road to recovery....FINALLY!!

I've started sewing over the last few days.  I have lots of things that have sat in my craft room all neglected and stuff....I will post pictures of these wonderful little projects soon.  

But, for now, I'd like to leave you with a couple of things to cheer you up....

My dangerously bright spring manicure!

An awesome vintage ad!!

Tuesday, March 1, 2011

Things are moving right along!

-3.1 pounds (37 lbs total)

I'm a big dork...my Dr. Who nails!
I started back to work today!  Whoo hoo!!  I worked from 8:30am to noon....got home by one and slept from 1 to 6.  Tomorrow I will be working from 10 to noon and we'll see if my nap is shorter.  *L*
We are back on track with the diet...or lifestyle change as we like to call it.  Partly because it's time and I've maintained for far too long....and partly because the new anti-viral medication I'm on makes me queasy and jittery!  So it all works together.  *L*  I've been a bit crafty so I've done a little bit of sewing, and a little bit of crocheting.  I managed to get my hair dyed with a fresh coat of hot pink...it was getting pretty faded...and I did my nails.  I'm slowly working on a couple of craft swaps, and planning out some costumes for my husband and daughter.

I've mentioned before that my husband and youngest daughter go to an anime convention every year together.  It's just something they enjoy and they like that it's "their" time together.  However....this year is seems they've decided I should go with them!  What?  I have nothing to wear!!  Damn it....now I have to make myself something!  *L*  I sew....A LOT....so I am making three costumes for my daughter for that weekend, and my husband has decided to try his hand at a steampunk outfit.  He didn't ask for it, but how can I let him go to a convention without something new and cool to wear...so I'm making him a vest and a long coat!
I've decided to wear something steampunk as well.  I started a skirt, and ordered a kick ass pattern from Laughing Moon Merchantile for an underbust corset!!  Oh how the things I like to wear and do are so varied...so haphazard.....so strange!  *L*
I'm going back and forth on making my outfit all browns and burgundys and western-y and zebra print and hot pink.....I'm leaning toward the zebra today...but yesterday it was the western.  I better decide soon...the convention is in April!

Friday, February 25, 2011

Oh how things change.

So, here I am...one month out from my little elbow rubbing with Meningitis and Encephalitis.  I haven't gone back to work yet.
I feel "wrong".  I have no other way to describe it.  I find myself staring off into space with my mouth open while my life happens around me.  I'm tired.  I feel different than I did before this happened.  I feel like I should be able to bounce back like I do after a cold.  But I feel different.  I feel panicked.  I feel tired.  I feel uninterested.
Like I said, my life is happening around me.  My husband is having a conversation with our oldest son about Dungeons and Dragons.  My youngest daughter is in my craftroom sewing something...without my help.  My 18 year old son went to Spokane for the weekend.  My other daughter turned 20 years old today.  My life is happening around me.
I haven't seen any friends since the hospital.  It happens like that...the emergency is passed so my friends go on with their lives.  I should be going on with mine, but I'm not.  I sit here in my recliner feeling like crap, watching my life happen without me and feeling like crying all the time.
I don't know how to fix it.  I don't know what kind of help to ask for since I don't really know what's wrong.

Here's hoping for some better days.

Friday, February 18, 2011

What the hell just happened??

This is what feeling
like crap looks like!!
I have the best husband EVER!!
He painted my toenails so my feet
would be pretty!
Well, my whole world has been given quite a good and truly unexpected shake.  On the 1st of February I got out of bed and started my day just like every other day, and by lunchtime I had a little headache.  I took some Ibuprofen and went about my business....the headache only got worse.  I went to bed at 9pm in hopes of waking up in the morning headache-free.....I didn't sleep but a few minutes off and on that night and started to have a little fever.  I was sound and light sensitive, and my head was POUNDING.  I stayed home from work, as did my husband.  We went to the doctor to get treatment for what we thought was a migraine.  I got some shots of pain meds and anti nausea meds and they told me to go home and sleep and I would feel better when I woke up....they were wrong.  By 9:30 that night I was sure I was dying, so off we went to the ER.  7 hours and a spinal tap later I was admitted to the hospital for Viral Meningitis and Encephalitis.  I spent 7 days in the hospital.  I don't remember very much of the ER visit or the first couple of days in the hospital.  From what I understand, about 70% of people who get encephalitis and are untreated DIE!!  What the hell?  And of the 30% that survive only about 2% come out of it with very little or not mental problems.  Looks like someone is watching out for me, because I seem to be one of the very lucky 2%....I am so grateful for that.  I think I would have rather used my "good luck" to win the lottery, but I'll take being alive and fully functioning!  
PICC Line...the quickest way to a girls heart!
45 cm of blue tubing
I am home now, with a PICC Line and a fridge full of anti-viral medication bags. My husband comes home at lunch every day to help me administer. I have home health care coming once a week to make sure everything is going ok.
I don't know what happens now. Everyone keeps asking how I'm feeling and it's so hard to describe. I feel better....better than I did when I was first admitted to the hospital. But I don't feel good. How long is that going to last? My headache is not nearly as bad as it was when this started....but it's still there, sort of hovering at the edges. My eyes ache all the time. I'm exhausted all the time. Doing the smallest thing leads to a 4 hour nap. I can't focus on any one thing. I am living one nap to the next...one dose of meds to the next.
I had a doctors appointment yesterday...my biggest fear was that she wouldn't believe me when I told her all these things. I feel like I should be better...I should be 100%. I feel like I should be bouncing back and my life will go back to normal, like it does after I have a cold. It hasn't and I'm frustrated.  So, my doctor decided that, while I am getting better, she would be more comfortable keeping me on the anti-viral medication via IV for one more week.  I guess I can live with that.
Your life can be changed drastically and instantly with no warning!!  Tell the people you care about that they are important and that you love them as often as you can and don't get caught up in petty meaningless crap...life is very very short!

Hospital hand puppets.  This is what you get to do when you're in isolation!


Saturday, January 29, 2011

I dream of being a roller derby girl!!

I have found my people....they look like me, they talk like me.....they act like me.....they are my people....I just haven't met them yet!!!  *L*  I am obsessed...and I do mean OBSESSED with roller derby.  I want to be on a team....I want to skate!!  Unfortunately I live in a very small rural farming town...and they are only interested in the county fair and cowboys.  My town has a hard time accepting the bright pink hair, the piercings, and all the tattoos.  The closest roller derby team is two hours away...and they are a brand new team!  Oh what I wouldn't give to get in on the ground floor of that.  I just can't afford to drive two hours several times a week.  So I obsess from afar *L*.
My husband bought me a roller derby game for the Wii....not quite the same but I love it anyway!

I work as the office manager for two lawyers...and I found out on Friday that one of them won't be working for the county anymore at the end of April.  This will cause my hours to be cut back and I will be losing about a thousand dollars a month.  I'm still in a whole lot of shock over that one!  I'm not completely sure what I'm going to do.  I had been planning on trying to get back to school for hair and nails...but that may be right out with the loss of income!  *L*  But, life goes on and it will all work out!

Sunday, January 2, 2011

Day 2...so lazy!!

I accomplished about nothing today.  I did manage to get part of the sewing room picked up and I tightened up and replaced my friend Polly's hair extensions.  That's about it.  My neck is still out so I'm not really able to do much.  Tomorrow will be a better day!

I think I'll call it a night early, take some Aleve and go to bed and watch some tv!

Wednesday, December 29, 2010

I can't turn left!

I must have slept with my head at a strange angle last night....I woke up this morning and couldn't turn my head to the left...I am the anti-Zoolander!!

I've been taking a break from sewing for a few days....just need to recover from the holidays!  But Big Ol' Betty will be put on her stand this weekend so I can start work on my overalls...again!!

Hope you all have a wonderful and safe New Year!!

Wednesday, December 15, 2010

Ahhhh, Christmas is just around the corner!

So I did nothing even sort of creative last night!  My husband, our boys and some of their friends played cards last night.  My craft room cutting table also doubles as a gaming table...I was all stiff from my fall down the driveway yesterday so I settled into my chair with a blankie, my laptop, some aspirin and a can of Almond Roca (so much for the diet).  I was in bed and asleep by 9!  I did manage to stay asleep all night, which is a rarity for me....Feeling pretty good today!

I do have sewing plans...but I am finding it hard to be all motivated when I get off work at 4 and it's already dark and cold outside.  During the winter I find that I'd much rather cuddle on the couch with my husband and hot chocolate then sit in my sewing room.  However....Christmas is just around the corner...a little more than a week!!  I promise myself every year that I won't be getting things together just days before Christmas!  I don't think I've EVER kept that promise.  The other problem I'm encountering is when I finally do manage to drag myself into the craft room I can't seem to concentrate on Christmas gifts...I'm far more interested in making things for myself.  *L*

Do you like my fluffy pink bird?
He's my work pen!  *L*
So no Victory rolls today...just too lazy for hair and makeup.  So I have pigtails and a completely makeup free face!  I am wearing the denim skirt I made for myself out of jeans I never wore.  It's so cute...probably too young for me, but this my year of "I don't care what people think".  *L*  Leggings, brown sweater and brown socks with my super cute tennies!!

I think today might be a good day!!

Monday, December 13, 2010

Couldn't find a thing to wear!!

Well, it's Monday, and I couldn't find anything cute or interesting to wear.  So I have resorted to wearing a giant sweater and my "mom" jeans.  I made myself a mini skirt out of an old pair of jeans, but I wasn't really feeling it when I got dressed this morning.  I think I need more clothes *L*

  It would seem that blogging over the weekend is a bit more difficult than I anticipated.  It's not that I don't have the time.  I'm lazy.  I spend quite a bit of time with my laptop, well, in my lap on the weekends, but my addiction this weekend seemed to be The Sims 3.  I don't so much play the game as much as I build people and houses.  Don't get me wrong...I love the game...I love all that power I can wield over my town full of little people who must obey my every command.  *L*  But I also like a good cheat code that gives me unlimited money to build and buy whatever I want.  All my little people are fatties, all unemployed, and all fabulously wealthy.  *L*

I managed to get in some sewing on Saturday, but not much.  I made a hat for my nephew but it has to be all picked apart and redone because I managed to get the size wrong.  Sad day!  I didn't do anything crafty at all on Sunday...just vegged around the house.  Spent time with my husband, went to a meeting for our local medieval recreation group that I and my family are involved in.  Ate some gingerbread cookies....ate some more gingerbread cookies.

Tonight there will be no sewing again.  Our youngest two kids are in high school, one Sophomore and one Senior.  Both are in the band and/or choir and the school is having their annual Christmas concert tonight.  It is about 3 hours of hellish torture.  They one or two bright spots for the night are the Jazz Band...who play all swing style music, and the Advanced Choir...which is full of kids who had to audition to be in so they can actually sing.

I look so disgusted *L*
And my hair is a strange color!


On a fashion note, I managed to get my hair into actual victory rolls (good job ME)!!  It's been a while since I've been able to do that since I cut my hair off several years ago so I could dye it strange colors.  I miss the hot pinkness of my hair.   My hair is telling me it wants to be pink again....no matter what color I dye it, the pink always peeks out!!

Saturday, December 11, 2010

Oops...missed a day!

Well then.  I already missed a day of my "I'm going to blog everyday"!  *L*  I was otherwise occupied in the craftroom.  I made myself a denim mini-skirt out of a pair of jeans that I've never worn....I LOVE it!!  I haven't worn a mini skirt since I was in high school, and that was quite some time ago, let me tell you.  *L*
I worked on my 40's-ish overalls....they were an epic failure.  Despite measuring the crotch was too short so it ... um....rode up??  *L*  It was soooo not flattering!  However, I am determined to make a pair of overalls that I can wear...so I will use the disaster as a learning experience and I will measure twice this time.  Fortunately I have a lot of this beige material.  The silhouette of the overalls looks good, so I'm happy with they idea of the pattern I made...just needs some modifications.

Big Apple Red
I did manage to make an appointment for a haircut.  Can't get in until December 21.  The girl who cuts my hair is great and always always booked for weeks.  But it's worth the wait.  I also managed to get a few Christmas presents sewn AND I managed to give myself a fresh new manicure!!